Uniquely Gifted

OCD and Related Disorders
(Trichotillomania, Tourette Syndrome)

Contents

• Obsessive-Compulsive Disorder (OCD)
• PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections)
• Tourette Syndrome
• Trichotillomania

Please note: Being listed here is not per se an endorsement of any particular site or email list. I have included annotations for those sites or lists that I am familiar with and strongly recommend.

Obsessive-Compulsive Disorder (OCD)

Obsessive-Compulsive Foundation
http://www.ocfoundation.org/

Panic and Anxiety Disorders at About.com (includes info on Agoraphobia, GAD, OCD, PTSD & Trauma, Social Phobia, Specific Phobias)
http://panicdisorder.about.com/

The Tourette Syndrome Plus site has an excellent introduction to childhood OCD at
http://www.tourettesyndrome.net/ocd_overview.htm

Email Lists/Bulletin Boards

                                                         Books on OCD

Brain Lock: Free Yourself from Obsessive-Compulsive Behavior: A Four-Step Self-Treatment Method to Change Your Brain Chemistry by Beverly Beyette & Jeffrey Schwartz.

It's Nobody's Fault: New Hope and Help for Difficult Children and Their Parents by Harold Koplewicz. Times Books. This book discusses diagnosis, treatment, and prognosis for ADD, OCD, separation anxiety, social phobia, generalized anxiety disorder, enuresis/bedwetting, Tourette Syndrome, depression, bipolar, schizophrenia, eating disorders, conduct disorders, and autism spectrum disorders.

Obsessive-Compulsive Disorder: Help for Children and Adolescents by Mitzi Waltz. Patient-Centered Guides. An excellent guide to understanding diagnosis, treatment and parenting of kids with OCD.

Obsessive Compulsive Disorder: New Help for the Family by Herbert Gravitz. Healing Visions Press.

Teaching the Tiger: A Handbook for Individuals Involved in the Education of Students with Attention Deficit Disorders, Tourette Syndrome or Obsessive Compulsive Disorder  by Marilyn P. Dornbush & Sheryl K. Pruitt. Hope Press. A reference book for parents and educators of students with Tourette Syndrome, Attention Deficit Disorder, and/or Obsessive Compulsive Disorder, describing how these disorders affect students on all levels - cognitive, behavioral, emotional - and providing practical suggestions.

PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections)

Recently, it has been recognized that there may be a relationship between certain strep infections and the onset of OCD and/or Tourette Syndrome symptoms.  There's a good introduction to the topic at
http://www.tourettesyndrome.net/pandas.htm

NIMH (The National Institute of Mental Health) has information on PANDAS at
http://intramural.nimh.nih.gov/research/pdn/web.htm

Tourette Syndrome

Tourette Syndrome Association
http://www.tsa-usa.org/

Tourette Syndrome "Plus" – is a wonderful site with excellent information on a wide variety of topics, including related disorders, being an informed consumer of mental health care and medications, and advocacy.
http://www.tourettesyndrome.net/

Email Lists/Bulletin Boards

                                   Books with Information on Tourette Syndrome

It's Nobody's Fault: New Hope and Help for Difficult Children and Their Parents by Harold Koplewicz. Times Books. This book discusses diagnosis, treatment, and prognosis for ADD, OCD, separation anxiety, social phobia, generalized anxiety disorder, enuresis/bedwetting, Tourette Syndrome, depression, bipolar, schizophrenia, eating disorders, conduct disorders, and autism spectrum disorders.

Tourette's Syndrome: Tics, Obsessions, Compulsions: Development Psychopathology and Clinical Care by James F. Leckman.  Technical but very comprehensive.  A very useful reference.

Teaching the Tiger: A Handbook for Individuals Involved in the Education of Students with Attention Deficit Disorders, Tourette Syndrome or Obsessive Compulsive Disorder  by Marilyn P. Dornbush & Sheryl K. Pruitt. Hope Press. A reference book for parents and educators of students with Tourette Syndrome, Attention Deficit Disorder, and/or Obsessive Compulsive Disorder, describing how these disorders affect students on all levels - cognitive, behavioral, emotional - and providing practical suggestions.

Trichotillomania

TLC (Trichotillomania Learning Center, Inc.)
http://www.trich.org/v1/home.htm

Email Lists/Bulletin Boards

There is a list of online trichotillomania support groups at
http://www.trich.org/v1/links.htm#onlinegroups

Overwhelmed by all the terminology and abbreviations? In addition to the acronyms page at this site, there's an excellent Dictionary for Parents of Children with Disabilities (in PDF format, you need Adobe Acrobat to read it) at http://www.usd.edu/cd/dictionary/.  It is also available as a website (but may take a long time to load) at http://www.usd.edu/cd/dictionary/dictionary.htm
There's a shorter "Glossary and Guide to Acronyms" (also in PDF) by Leslie Packer, Ph.D., at http://www.tourettesyndrome.net/Files/Conditions/Glossary2002.pdf
Another dictionary can be found at http://www.feat.org/legal/speddict.htm and another list of acronyms at http://www.feat.org/legal/terms.html. 

Last updated Friday October 06, 2006

"Children require guidance and sympathy far more than instruction."
       ~ Anne Sullivan (Helen Keller's Teacher)

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