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OCD and Related Disorders
(Trichotillomania, Tourette Syndrome)

Contents

 

Please note: Being listed here is not per se an endorsement of any particular site or email list. I have included annotations for those sites or lists that I am familiar with and strongly recommend.

 

Obsessive-Compulsive Disorder (OCD)

Obsessive-Compulsive Foundation
http://www.ocfoundation.org/

Panic and Anxiety Disorders at About.com (includes info on Agoraphobia, GAD, OCD, PTSD & Trauma, Social Phobia, Specific Phobias)
http://panicdisorder.about.com/

The Tourette Syndrome Plus site has an excellent introduction to childhood OCD at
http://www.tourettesyndrome.net/ocd_overview.htm

Email Lists/Bulletin Boards

There's a Yahoogroups list for people with OCD, their families and friends at
http://health.groups.yahoo.com/group/OCD-Support/

Subscribe to Parents of Adults with OCD List at parentsofadultswithOCD-subscribe@yahoogroups.com.Access the files, bookmarks, and archives for the list at http://groups.yahoo.com/group/ocdandparenting. List advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D.List moderators are Wendy Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy Robinson, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at mlharkins@bellsouth.net.

The ocdteen list is sponsored by the Obsessive Compulsive and Spectrum Disorders Association (OCSDA).  It is open to teens and young adults with OCD (pre-teens ages 10 to 13 are welcome with parental supervision). The list has 2 "safe parents", a "safe Teen", and a Dr. for assistance. The Teen OCD webpage is located at http://www.angelfire.com/il/TeenOCD. To subscribe, send a blank email to ocdteen-subscribe@yahoogroups.com.

OCSDA also has a chat room (live chat) at
http://www.ocdhelp.org/chat.html

                                                         Books on OCD

Brain Lock: Free Yourself from Obsessive-Compulsive Behavior: A Four-Step Self-Treatment Method to Change Your Brain Chemistry by Beverly Beyette & Jeffrey Schwartz.

It's Nobody's Fault: New Hope and Help for Difficult Children and Their Parents by Harold Koplewicz. Times Books. This book discusses diagnosis, treatment, and prognosis for ADD, OCD, separation anxiety, social phobia, generalized anxiety disorder, enuresis/bedwetting, Tourette Syndrome, depression, bipolar, schizophrenia, eating disorders, conduct disorders, and autism spectrum disorders.

Obsessive-Compulsive Disorder: Help for Children and Adolescents by Mitzi Waltz. Patient-Centered Guides. An excellent guide to understanding diagnosis, treatment and parenting of kids with OCD.

Obsessive Compulsive Disorder: New Help for the Family by Herbert Gravitz. Healing Visions Press.

Teaching the Tiger: A Handbook for Individuals Involved in the Education of Students with Attention Deficit Disorders, Tourette Syndrome or Obsessive Compulsive Disorder  by Marilyn P. Dornbush & Sheryl K. Pruitt. Hope Press. A reference book for parents and educators of students with Tourette Syndrome, Attention Deficit Disorder, and/or Obsessive Compulsive Disorder, describing how these disorders affect students on all levels - cognitive, behavioral, emotional - and providing practical suggestions.

PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections)

Recently, it has been recognized that there may be a relationship between certain strep infections and the onset of OCD and/or Tourette Syndrome symptoms.  There's a good introduction to the topic at
http://www.tourettesyndrome.net/pandas.htm

NIMH (The National Institute of Mental Health) has information on PANDAS at
http://intramural.nimh.nih.gov/research/pdn/web.htm

Tourette Syndrome

Tourette Syndrome Association
http://www.tsa-usa.org/

Tourette Syndrome "Plus" – is a wonderful site with excellent information on a wide variety of topics, including related disorders, being an informed consumer of mental health care and medications, and advocacy.
http://www.tourettesyndrome.net/

Email Lists/Bulletin Boards

Parent’s place has a Tourette’s bulletin board at
http://boards.parentsplace.com/messages/get/pptourette11.html

There is also a Tourette’s support usenet group alt.support.tourette

                                   Books with Information on Tourette Syndrome

It's Nobody's Fault: New Hope and Help for Difficult Children and Their Parents by Harold Koplewicz. Times Books. This book discusses diagnosis, treatment, and prognosis for ADD, OCD, separation anxiety, social phobia, generalized anxiety disorder, enuresis/bedwetting, Tourette Syndrome, depression, bipolar, schizophrenia, eating disorders, conduct disorders, and autism spectrum disorders.

Tourette's Syndrome: Tics, Obsessions, Compulsions: Development Psychopathology and Clinical Care by James F. Leckman.  Technical but very comprehensive.  A very useful reference.

Teaching the Tiger: A Handbook for Individuals Involved in the Education of Students with Attention Deficit Disorders, Tourette Syndrome or Obsessive Compulsive Disorder  by Marilyn P. Dornbush & Sheryl K. Pruitt. Hope Press. A reference book for parents and educators of students with Tourette Syndrome, Attention Deficit Disorder, and/or Obsessive Compulsive Disorder, describing how these disorders affect students on all levels - cognitive, behavioral, emotional - and providing practical suggestions.

Trichotillomania

TLC (Trichotillomania Learning Center, Inc.)
http://www.trich.org/v1/home.htm

Email Lists/Bulletin Boards

There is a list of online trichotillomania support groups at
http://www.trich.org/v1/links.htm#onlinegroups

 


Overwhelmed by all the terminology and abbreviations? In addition to the acronyms page at this site, there's an excellent Dictionary for Parents of Children with Disabilities (in PDF format, you need Adobe Acrobat to read it) at http://www.usd.edu/cd/dictionary/.  It is also available as a website (but may take a long time to load) at http://www.usd.edu/cd/dictionary/dictionary.htm
There's a shorter "Glossary and Guide to Acronyms" (also in PDF) by Leslie Packer, Ph.D., at http://www.tourettesyndrome.net/Files/Conditions/Glossary2002.pdf
Another dictionary can be found at http://www.feat.org/legal/speddict.htm and another list of acronyms at http://www.feat.org/legal/terms.html


Last updated Friday October 06, 2006


"Children require guidance and sympathy far more than instruction."
       ~ Anne Sullivan (Helen Keller's Teacher)

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