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Miscellaneous Medical Conditions

 

Please note: Being listed here is not per se an endorsement of any particular site or email list. I have included annotations for those sites or lists that I am familiar with and strongly recommend.

Sites

Asthma and Allergy Foundation of America
www.aafa.org

Bedwetting Information
http://www.drgreene.com/54_11.html

Chronic Fatigue Syndrome (CFS)
http://www.cdc.gov/ncidod/diseases/cfs/

Encopresis/Constipation
http://hsc.virginia.edu/cmc/tutorials/constipation/

Epilepsy Foundation of America
http://www.efa.org/

Fibromyalgia Network
http://www.fmnetnews.com/

Parents HLHS page - information on Hypoplastic Left Heart Syndrome (includes links to other sites for congenital heart problems) and information on ordering a handbook for parents.
http://home.comcast.net/~lmwood/hlhspage.html

KidPower Family Support Resource is a nonprofit organization for families whose children are mildly affected by cerebral palsy and/or other disabilities.
http://www.kid-power.org

Email Lists/Bulletin Boards

KidPower is a support and information list for families whose children are mildly affected by cerebral palsy and/or other disabilities.
http://groups.yahoo.com/group/KidPower/

POFAK (Parents of Food Allergy Kids) is an email list for families of children with severe food allergies.
http://groups.yahoo.com/group/POFAK/

                                               Books on Medical Conditions

Dr Tom Plaut's Asthma Guide for People of All Ages by Thomas F. Plaut. Pedipress. Many of special needs kids have asthma. This book provides a clear guide to understanding and managing asthma in children and adults. It was recommended to me by our pediatrician.

 


Overwhelmed by all the terminology and abbreviations? In addition to the acronyms page at this site, there's an excellent Dictionary for Parents of Children with Disabilities (in PDF format, you need Adobe Acrobat to read it) at http://www.usd.edu/cd/dictionary/.  It is also available as a website (but may take a long time to load) at http://www.usd.edu/cd/dictionary/dictionary.htm
There's a shorter "Glossary and Guide to Acronyms" (also in PDF) by Leslie Packer, Ph.D., at http://www.tourettesyndrome.net/Files/Conditions/Glossary2002.pdf
Another dictionary can be found at http://www.feat.org/legal/speddict.htm and another list of acronyms at http://www.feat.org/legal/terms.html


Last updated Friday October 06, 2006


"Children require guidance and sympathy far more than instruction."
       ~ Anne Sullivan (Helen Keller's Teacher)

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